Rustynuts Posted June 4, 2007 Report Share Posted June 4, 2007 I was wondering what was going on when I checked a couple of days ago. Didn't like to ask, though. Let us know when you hear anything, and glad he's feeling well, at least. Link to comment Share on other sites More sharing options...
JamesB Posted June 4, 2007 Report Share Posted June 4, 2007 Glad he's feeling well. As Rusty says, do keep us posted - I will get so much more done once I can uncross my fingers. Link to comment Share on other sites More sharing options...
dazdot Posted June 17, 2007 Author Report Share Posted June 17, 2007 My brother now has to have another consultation tomorrow, during which he will have to have blood tests to find out the options for the bone marrow transplant. This has come as bolt from the blue as there has been no real mention of the transplant for months, this has obviously knocked him down a bit from his previous high. We are now just hoping the good news will continue. Link to comment Share on other sites More sharing options...
Ian_C Posted June 17, 2007 Report Share Posted June 17, 2007 [ QUOTE ] We are now just hoping the good news will continue. [/ QUOTE ] Fingers crossed that it does just that. Ian Link to comment Share on other sites More sharing options...
lottiefox Posted June 17, 2007 Report Share Posted June 17, 2007 Daz, all the best for him and the family tomorrow....I'll have my fingers and toes crossed....keep us posted. Link to comment Share on other sites More sharing options...
CarMad Posted June 17, 2007 Report Share Posted June 17, 2007 Yeah see what they have to say about things first then deal with it then. Hope all is ok. Link to comment Share on other sites More sharing options...
JamesB Posted June 18, 2007 Report Share Posted June 18, 2007 Good luck for tomorrow. Link to comment Share on other sites More sharing options...
dazdot Posted June 19, 2007 Author Report Share Posted June 19, 2007 Thanks for all the messages, they are really appreciated . It is now confirmed that he is is 100% in remission , but this is only a temporary thing, he will never be cured. His consultant has informed him that he is a prime candidate for a new anti body treatment (he has already had a small course of this) the only problem being is that this is not yet a fully recognised treatment in this country, therefore there is no funding available for this. That in itself is not a huge problem as he will go private if necessary. This treatment will still not cure him it will probably give him 2 - 3 years, this is then where the bone marrow treatment comes in, again, this is not going to cure him, but will give him up to 5 years maximum. We still don't know if once the 5 years is up if he can then have another course. All in all we think it is still a step in the right direction. Link to comment Share on other sites More sharing options...
Dave Posted June 19, 2007 Report Share Posted June 19, 2007 Good news mate Take it a step at a time. Be thankful for the extra time and hopefully every time he has treatment the time period will increase. New treatments are being developed all the time so never loose hope Link to comment Share on other sites More sharing options...
lottiefox Posted June 19, 2007 Report Share Posted June 19, 2007 Good news Daz, big credit to your brother and your family for dealing with this with so much courage and optimism....he is a fighter evidently and he will beat this as much as he can I am sure. New treatments come out all the time and I bet he'll take all possible opportunities. Pass on my best wishes to him and get those open! Link to comment Share on other sites More sharing options...
JamesB Posted June 19, 2007 Report Share Posted June 19, 2007 Great news about the remission. I guess there isn't too much you can do for a while to change the course of events so I hope you all get the most out of your 'bonus' time together. It is possible to repeat bone marrow transplants but not that common. The best people to ask are the ones looking after him, of course. Link to comment Share on other sites More sharing options...
dazdot Posted August 14, 2007 Author Report Share Posted August 14, 2007 It's been a long time since the last update, so here goes. His 3 monthly check up has gone well as the specialist can not feel the lumps this time. That was the good news. The other (I wont say bad) news is that the new treatment (Rituximab) is not available on the Nhs. There are a few trails up and down the country, the only problem is you are not allowed to join these unless they are in your region. So it looks as though he will have to go private. Thanks for reading. Link to comment Share on other sites More sharing options...
lottiefox Posted August 14, 2007 Report Share Posted August 14, 2007 Good news Daz, thanks for the update. Is it worth writing to local MPs etc regarding the drug he needs and stirring up some publicity or does he just want to get on with life and not have the fuss? It seems wrong he should have to go private but at the end of the day if it helps him, its worth any price. I know you cannot put a value on him beating this thing. Best wishes to him for continued positive news! Link to comment Share on other sites More sharing options...
dazdot Posted August 14, 2007 Author Report Share Posted August 14, 2007 [ QUOTE ] Good news Daz, thanks for the update. [/ QUOTE ] Your welcome. [ QUOTE ] Is it worth writing to local MPs etc regarding the drug he needs and stirring up some publicity or does he just want to get on with life and not have the fuss? [/ QUOTE ] I really don't know to tell you the truth, but it's worth a thought. [ QUOTE ] It seems wrong he should have to go private but at the end of the day if it helps him, its worth any price. [/ QUOTE ] It certainly does seem wrong, especially when he was told that he is an ideal candidate due to the way he has responded to the chemotherapy. [ QUOTE ] Best wishes to him for continued positive news! [/ QUOTE ] Thank you so much Lottie Link to comment Share on other sites More sharing options...
ian_m Posted August 14, 2007 Report Share Posted August 14, 2007 Great news Daz!! There has been a lot of sorrow lately and its nice to read some positive news Link to comment Share on other sites More sharing options...
JamesB Posted August 14, 2007 Report Share Posted August 14, 2007 Great stuff, Daz, it sounds about as good as you could have hoped for. [ QUOTE ] [ QUOTE ] It seems wrong he should have to go private but at the end of the day if it helps him, its worth any price. [/ QUOTE ] It certainly does seem wrong, especially when he was told that he is an ideal candidate due to the way he has responded to the chemotherapy. [/ QUOTE ] I'm going to be a little hard here and say that I don't think this is wrong at a population level. These treatments can be very expensive and the NHS doesn't have limitless resources so there has to be some rationing somewhere. Of course, at an individual level, you never want to see anyone deprived of treatment and it feels instinctively wrong. I hope you don't mind me saying this, Daz. I'm not wholly insensitive though and wouldn't have done if you hadn't said that he could afford to pursue it privately. Link to comment Share on other sites More sharing options...
dazdot Posted August 16, 2007 Author Report Share Posted August 16, 2007 [ QUOTE ] Great stuff, Daz, it sounds about as good as you could have hoped for. [ QUOTE ] [ QUOTE ] It seems wrong he should have to go private but at the end of the day if it helps him, its worth any price. [/ QUOTE ] It certainly does seem wrong, especially when he was told that he is an ideal candidate due to the way he has responded to the chemotherapy. [/ QUOTE ] I'm going to be a little hard here and say that I don't think this is wrong at a population level. These treatments can be very expensive and the NHS doesn't have limitless resources so there has to be some rationing somewhere. Of course, at an individual level, you never want to see anyone deprived of treatment and it feels instinctively wrong. I hope you don't mind me saying this, Daz. I'm not wholly insensitive though and wouldn't have done if you hadn't said that he could afford to pursue it privately. [/ QUOTE ] Everybody is welcome to there opinion James. You are right with all of the above, especially the cost of the treatment, we will know for definite the full cost for the 2 year treatment on Tuesday 21st, the figure being banded about at the moment is £15,000. Not a great amount of money where life is concerned. Link to comment Share on other sites More sharing options...
dazdot Posted September 4, 2007 Author Report Share Posted September 4, 2007 He has been accepted on a trial for the drug Rituximab (first session today), he will need to have one session every 3 months for 2 years, the first 2 courses are to be free but the remaining sessions he may have to pay for. Good news in my books. Thanks for reading. Link to comment Share on other sites More sharing options...
danksy Posted September 4, 2007 Report Share Posted September 4, 2007 great news fingers crossed mate Link to comment Share on other sites More sharing options...
lottiefox Posted September 4, 2007 Report Share Posted September 4, 2007 Great news Daz, hope he continues with his fab progress! Link to comment Share on other sites More sharing options...
dazdot Posted October 8, 2007 Author Report Share Posted October 8, 2007 Well I thought this thread would carry on being full of good news, but obviously not. The good news is that my brother is doing great, he is getting the anti body therapy he needs, so thumbs up there. The bad news is that my Mum has now had it confirmed (she had a brain scan last Thursday), that her original lung cancer has spread to her brain (even though her original treatment consisted of chemotherapy and a six week course of preventative radiotherapy to her head), apparently she has six secondary cancers in the brain along with a lesion and some swelling. She has been suffering with headaches just lately and has now started to lose the use of one leg and one arm. At the moment it seems as if all that can happen is steroid treatment to keep her comfortable until the inevitable happens. Fcuking cancer, it seems to be haunting our family. Thanks for reading. Link to comment Share on other sites More sharing options...
Dave Posted October 8, 2007 Report Share Posted October 8, 2007 Sorry to hear that mate. Link to comment Share on other sites More sharing options...
lottiefox Posted October 8, 2007 Report Share Posted October 8, 2007 Daz, not a lot to say that can make it better but my thoughts are with you and your Mum and the rest of the family. Cancer is such an evil disease. Link to comment Share on other sites More sharing options...
Ian_C Posted October 8, 2007 Report Share Posted October 8, 2007 Gutted to hear this. Perhaps this is just me trying to see a positive in every negative, but at least you can say goodbye to her. Ian Link to comment Share on other sites More sharing options...
dazdot Posted October 19, 2007 Author Report Share Posted October 19, 2007 Thanks for all the messages. It was confirmed yesterday (by the consultant) that my mothers brain cancer is incurable, she is to have 10 sessions of radiotherapy starting in approx 2 weeks time. This should hopefully prolong her life, but by how much no one knows. The anti depressants and steroids have perked her up so much that she is the one keeping all us sane. Thanks for reading. Link to comment Share on other sites More sharing options...
Recommended Posts
Please sign in to comment
You will be able to leave a comment after signing in
Sign In Now